What is NaviCare/SoinsNavi?
NaviCare/SoinsNavi is a navigation centre for children with complex care needs in New Brunswick. The primary aim of the centre is to help facilitate more convenient and integrated care to support the physical, mental, emotional, and social needs of the children/youth and their families.
Who are we?
We are a team of researchers, clinicians, parents, and youth who are interested in the wellness of New Brunswick families of children/youth with a wide range of complex care needs. We are looking for ways to remove barriers to care for children/youth with complex care needs and their families, to improve collaboration and care coordination across sectors (health, social, and educational services). The main point-of-contact for most families is our patient navigator, who is a bilingual registered nurse with training in navigation.
Who do we serve/help?
We serve children/youth (aged 25 years or younger) who have complex care needs and their families (parents, caregivers) who live in New Brunswick, Canada. We are also a resource for the child’s/youth’s care team (e.g. health care providers, educators, social service providers).
What are complex care needs?
A child/youth with complex care needs require significant additional medical/health, social and/or educational support. This support is beyond what is required by children/youth in general. If you’re unsure about whether or not your child/youth has complex care needs, please contact our patient navigator for assistance.
What kind of services do we provide?
We provide navigational support to access services and resources for any family in New Brunswick who is caring for a child/youth, aged 25 years or younger, with complex care needs. These services and resources may be within the family’s own community, across New Brunswick, or outside of the province. Moreover, these services and resources will be broader than just health resources; they will indeed be crossing all sectors (health, social, and educational services). Families can communicate with our patient navigator.
What does your service cost?
All services provided by NaviCare/SoinsNavi are free of charge.
Who is our patient navigator?
Our patient navigator is a bilingual registered nurse with training in navigation. She facilitates access to services and resources, by reducing barriers faced when dealing with multiple care providers across multiple locations. Our patient navigator help families navigate a complicated maze of services, treatments, and programs. A navigator can also empower families and individuals with the knowledge that they need to make an informed decision about their child's or their own health.
How is this service unique?
Children/youth and their families will work with our patient navigator – a role that is relatively new in Canada. Our patient navigator helps families coordinate access to appropriate services and resources for their children. In addition, our patient navigator will act as a resource for the child/youth’s care team, ensuring that the care remains integrated.
What can our family expect?
When first contacting NaviCare/SoinsNavi, families will have the opportunity to speak with our patient navigator about their unique situation and concerns. Once priorities are mutually decided, she will help connect families and youth with the most appropriate resources and services available. Our patient navigator does not provide direct medical care.
How can I access this service?
This bilingual service is offered free of charge. Your pediatrician or other care providers might have referred you to our service. However, you can access our service just by calling or emailing our patient navigator, no referral necessary (1-888-641-1977; firstname.lastname@example.org).
Where are we located?
We believe all New Brunswickers should have equal access to our services, no matter where they live. That is why all our services are accessible through the phone or online. In some situations, the patient navigator will also do site visits, as needed and when possible.
What languages will the services be offered in?
All services will be offered in both French and English.
How did the Centre begin?
In December 2014, our research team was awarded a $750,000 four-year grant from the New Brunswick Children’s Foundation to implement NaviCare/SoinsNavi, which is the first navigation centre for children/youth with complex health conditions and their families in NB. A year later, the team expanded to include a partnership with researchers from the University of Prince Edward Island University (thanks to an additional federal grant). After a needs assessment phase that explored the experiences of families across NB, NaviCare/SoinsNavi was launched as a pilot project in early January 2017. Please check out “Our Team” for more information on the leadership team of this centre, including Scientific Co-Directors Dr. Rima Azar and Dr. Shelley Doucet and Senior Research Associate Dr. Alison Luke.
How is NaviCare/SoinsNavi funded and governed?
The centre is funded through a grant from the NB Children’s Foundation, a provincial charity organization. NaviCare/SoinsNavi is jointly led by a team of researchers at the University of New Brunswick Saint John and Mount Allison University. The team is advised by a Family Advisory Council, composed of families from across New Brunswick.
What research has been done to ensure the success of NaviCare/SoinsNavi?
The services offered are based on the results of the needs assessment phase conducted by the team in 2015-2016, which involved over 120 interviews with children/youth and their families as well as with health, social, and educational stakeholders. The team also did multiple site visits with navigation programs across North America and conducted an environmental scan of services available for children with complex health conditions in NB and in PEI.
What is the Family Advisory Council?
To help ensure that NaviCare/SoinsNavi meets the needs of children/youth and families, we have a Family Advisory Council, which includes six volunteers. These are parents of children/youth with complex care needs or young adults who have experienced growing up with a complex care needs. They meet monthly or as needed to advise the research team, our staff and our patient navigator.
What is your policy on confidentiality?
NaviCare/SoinsNavi is a research-based navigation service. We believe in strict patient confidentiality and privacy of information. However, as part of the on-going evaluation of NaviCare/SoinsNavi, all clients must consent to share some healthcare information privately with our research team. Your participation will be voluntary, however, should you choose not to participate or if you discontinue your participation, you will be withdrawn from NaviCare/SoinsNavi’s navigational services as we require access to client data for program evaluation and research. If you have any questions, please contact our Senior Research Associate, Dr. Alison Luke (email@example.com).